BREATHE OF AIR

DEAREST GOD

I AWAKENED TONIGHT

 WITH TOO DRY OF MOUTH

  

 I RIPPED MY MASK OFF AND STARTED TO PANIC

i REACHED FOR THE WATER AND COULD NOT PULL MYSELF UP

  

 I NEEDED A DRINK AND HALF TO SIPS

   

 OR I WILL CHOKE

 MY DIAPHRAGM DOES NOT WORK 

AND

IT DOES NOT SEND OFF CARBON DIOXIDE

 SO I NEED THIS BI-PAP MACHINE 

WORKS TO PUMP OUT THE CARBON DIOXIDE.

 NOW IF YOU ARE TAKING A DRINK AND CAN'T SWALLOW

 MORE THAN ANYTHING I WILL PROBABLY CHOKE. 

 INSTEAD I TOOK A SIP AND DROPPED THE WATER

ALL OVER THE FLOOR.

 AS THE SYSTEM SEEMS TO SETTLE DOWN 

 I STARE INTO THE DARK.

 I FEEL JUST LIKE JANE. 

THIS STUFF IS REMOVED FROM ME AS

 AS I DO WHAT   I CAN TO SETTLE DOWN. 

 LAST TIME WAS TONGUE AND TEETH

 ADD LUNGS AND CHOKING 

 AND 

 NOT BE ABLE TO TALK

THAT TAKE OF EVERYTHING

 EXCEPT MY BRAIN

 TECHNICALLY 

  

I HAVE TREMENDOUS KNOWLEDGE OF WHAT IS HAPPENING

  AND ALWAYS WILL HAVE A BRAIN TO SAY WHAT I WANT

 AND KNOW WHAT IS GOING ON. 

THIS IS YOUR GIFT TO ME LORD.

AND I VERY KNOW EVERYTHING COULD STOP IN A MINUTE

 I WANT MY FAMILY AND FRIENDS TO KNOW

 I HAVE HAD A WONDERFUL LIFE

 AND I HOPE YOU FOLLOW YOU DREAMS

 EVEN IF YOU LOSE LIKE I DID MANY TIMES.

 THIS IS MY TAPESTRY

 WITH GOLD AND  SILVER

 PURPLE AND BLACK.

 GOD PLEASE MAKE SENSE OF THIS AND HELP ME GO ON

 AND WANT TO LIVE AND BE WITH MY FAMILY


 THIS IS BEYOND THE NURSES

 THEY HAVE NEVER SEEN AN

 ALS PATIENT.

 NOT MANY HAVE IN THIS AREA

 BE STILL AND KNOW THAT  I AM GOD

 MY FAVORITE SAYING AND THIS IS THE FIRST TIME

  I HAVE BEEN ABLE TO SAY IT.

 IT IS A SIGN I AM GROWING

 NOT ACCEPTING IT,
BUT  THIS SAYING

 BUT IT IS IN MY HEART DEEP.

 GOD YOU WILL GET ME THROUGH WITH GRACE!!!