GOD LIFE IS THE PITS

  MY DEAREST GOD

I CAN'T MAKE SENSE OF THIS 

 AND

 EVERYBODY ELSE HAS QUICK ANSWERS!

I NEED HELP TO UNDERSTAND MYSELF

 WHILE OTHERS ARE TRYING TO MAKE ME COOPERATE,

SO THEY CAN DEAL WITH THIS.

THIS IS NOT FAIR.

 EVERYBODY THINKS HOW THEY WOULD LIKE TO DIE.

 FAST,

IN THEIR SLEEP

NO PAIN.

EVERYONE THINKS,

BECAUSE I AM NOT AFRAID TO EXPRESS MYSELF

THAT THEY CAN TELL ME WHAT

I SHOULD DO.

NOT IN A BAD WAY.

 IT IS LIKE CHILDREN. 

 WHEN PARENTS TEACH THEM TO BE INDEPENDENT THINKERS AND THEN THEY

INDEPENDENTLY TURN ON THEIR PARENTS

 PARENTS SAY 

 WHAT DID I RAISE

 A MONSTER.

WHAT DID  I RAISE 

  A MONSTER.

WHEN FACED WITH IMPENDING DEATH

 AND WILD EXPENSE

 IF PEOPLE CAN TELL ME WHAT TO DO THEN

  THAT CAN BE THEIR PRACTICE.

 WATCH JANE GO THROUGH THIS. 

 ISN'T IT INTERESTING 

 SHE GOT RID OF ALL HER STUFF AND SOLD HER HOUSE,

   GAVE AWAY HER CAR

   APPRECIATED EVERYTHING EVERYONE PUT THEIR SELF OUT TO DO FOR HER.

 PAID ALL HER BILLS

 DID WHAT SHE COULD FOR THE CHURCH (NOT ENOUGH)

 DID WHAT SHE COULD FOR HER COMMUNITY

 (DID NOT FINISH)

GOD SHE CHOKED IN PUBLIC, COULD NOT EAT RIGHT

LAUGHED INCESSANTLY,

CRIED UNCONTROLLABLY,

 EMBARRASSED US IMMENSELY

  AND THEN SIGNED OFF.

  WHOOPS SHE MADE US WORRY ABOUT HER BILLS

 SHE MIGHT LEAVE FOR US

  AND MADE US FEEL GUILTY

GOD

 WHY ON EARTH DO YOU PUT MESSY PEOPLE ON EARTH

 FOR US TO HAVE TO DEAL WITH.

  

 SHAME ON YOU.

  

 GOD DON'T YOU KNOW DEATH IS SUPPOSE TO BE EASIER.

  QUICK, NO PAIN, 

  

 NO TROUBLE

 ESPECIALLY LORD WHEN SOMEONE LIVES ALONE.

SHE MESSED UP HER LIFE BY HERSELF

 WHY SHOULD OTHERS HAVE TO HELP OR CARE.

SHE WAS A FOOL

 SHE TRUSTED CRIMINALS 

 AND THEY STOLE FROM HER

 SHE HELPED THE HOMELESS

 AND THEY ARE RUINING HER.  

 IT IS HER OWN FAULT.

NO WONDER YOU HAVE TO END HER  BREATHING.

SHE HAS CAUSED ENOUGH TROUBLE

AND NOW OF ALL THINGS SHE IS GOING TO DIE

AN EXTREME DEATH

MESSY, MESSY, MESSY.

GOD WHERE ARE YOU

 THIS IS MAKING A MESS OF EVERYTHING. 

 THIS IS NOT FUN

 GOD I AM TRYING TO FIND HUMOR IN THIS

I AM TRYING TO FIND PEACE SO

I CAN DEAL WITH THIS 

 I WISH I COULD DO THIS ALONE BUT I CAN'T

 OR
I GO IN A NURSING HOME. 

IT KILLED ME TO PUT MY  FATHER IN A NURSING HOME AND I WENT EVERYDAY

 LIFE HAS GOT SO BUSY

 FOR EVERYONE

 I DON'T MEAN TO CAUSE TROUBLE

WHY DIDN'T YOU PLAN BETTER GOD

THINGS ARE VERY MESSY

WELL LORD IT IS TIME TO TALK TO YOU

DEAR LORD

I PRAISE YOU FOR ALL THE OPPORTUNITIES

YOU HAVE GIVEN ME

 ALL YOU KNOW 

 I DON'T SHUT UP

 MAYBE I SHOULD

 FOR A LONG TIME I WAS A MOUSE

 A RUG FOR PEOPLE TO WALK ON

 THEN 

 I LEARNED TO SPEAK

 WITH MY BELOVED COUNSELOR

 AND THEN OTHERS

 I USED TO BELIEVE,

IF YOU LET PEOPLE KNOW WHAT YOU REALLY THOUGHT,

THAT THEY WOULD LEAVE YOU

AS A FRIEND.

 SO I WAS SICKENING NICE

SO I WOULD NOT MAKE ANYONE ANGRY.

 IT MADE EVERYONE ANGRY.

I COULD TELL YOU STORY AFTER STORY. 

THEN I STARTED GETTING HONEST
AND 
NO ONE LIKED THAT EITHER.

 NOW GOD,
I DON'T HAVE TIME TO FIGURE OUT,
WHAT PEOPLE WANT.

 I KNOW CHARACTER IS DEFINED 

BY SAYING 

NO TO ANYTHING YOU CAN'T SAY YES TO GOD.

SO WHAT AM I TRYING TO DO?

IS TALK TO YOU

 AND WITH YOU,
  I SAY,
I CAN COME TO YOU WITH ANYTHING!

  

 SO I WILL TELL YOU ABOUT LAST,

I HAD TERRIBLE NIGHT MARES

 I DREAMED PEOPLE WERE STABBING ME IN THE CHEST.  

 I WANTED TO GET UP AND BLOG,
BUT I COULD NOT.  

 I THOUGHT THAT WAS UGLY AND
NOT EVEN YOU WOULD LIKE ME TO WRITE THAT. 

 WELL I WROTE IT. 

  

 IT WAS TERRIBLE AND I FEARED,
YOU WOULD NOT WANT TO HEAR THE AWFUL.

 WHO AM I TO TRY A SPARE GOD THE UGLY TRUTH?

 AM I  GRANDIOSE?
HOW COULD I BELIEVE I AM TO THINK,
I CAN NOT DISAPPOINT GOD. 

 THEN, IF I CAN DISAPPOINT GOD 

 WHY CAN'T I MAKE OTHER PEOPLE DISAPPOINTED IN ME TOO.

IS THERE ANYTHING I CAN'T WRITE HERE,
THAT WOULD NOT SHOCK THE MASSES
OR
YOU GOD

SOME TIMES PEOPLE THINK TERRIBLE THINGS

 EVEN HOW THEY COULD DESTROY SOMEONE ELSE.

MURDER I MEAN

DO WE HAVE TO GO THROUGH THE UGLY TO GET TO THE BEAUTIFUL.

 I DON'T KNOW

 YOU SEE WHY I DID NOT WANT TO BLOG

 I AM MIXED UP.

 FEELINGS ARE FLOODING IN.

 MAYBE I SHOULD BE PUT IN JAIL.

I FEEL GUILTY ABOUT SO MUCH AND I BLAME OTHERS.

 BURDENS, MESSES, TROUBLES

 PLEASE GOD LIFT ME ABOVE ALL THIS. 

HELP ME TO HAVE PEACE

 LIVE AND LET LIVE

BLESS AND BE BLESSED

 GIVE AND ALLOW OTHERS TO GIVE TO YOU. 

 I AM JUST TRYING TO REMEMBER ALL YOU HAVE TAUGHT ME.

 FOOTPRINTS

 LORD WILL YOU CARRY ME FOR A WHILE

LORD IT IS SO DIFFICULT TO STAY ACTIVE

MY DEAREST LORD

TO ALL ALS SURVIVORS

HERE YE, HEAR YE!!!!

HOW DO YOU DO IT! 

 WE ARE SO DIFFERENT,
THOSE OF US WITH ALS

 YET ALL THE SAME!

 I MEAN THE WHOLE WORLD

 ARE YOU SUPPOSE TO GET A DISEASE AND GO AWAY?

  ARE YOU SUPPOSE TO GIVE UP!

 RICH SAYS HIS CEO HAD IT. 

 HE CONTINUED TO WORK 

AND THEY WANTED HIM TO,

BUT HE GAVE UP WORK.

HE WENT HOME  

AND SAT IN HIS ROOM

AND DIED!

 SO MY SON SAID KEEP GOING AS LONG AS YOU CAN!

 THEN IT IS SO DIFFICULT.

 I WENT TO SUNDAY SCHOOL, CHURCH AND 

SUNDAY NIGHT BOOK STUDY.

  

 IT WAS WONDERFUL TO BE WITH EVERYONE,

. I DON'T WANT THIS TO CHANGE. 
I WANT TO DO THIS FOREVER.

 BUT LORD IT IS SO DIFFICULT TO BE.

 IT IS SO DIFFICULT TO BE IN A DIFFERENT PLACE.

 IF IT WAS NOT FOR KELLY LAST NIGHT,
I WOULD HAVE LEFT BECAUSE,

 I COULD NOT BREATHE!

 LIVING IN THE TENSION IS DIFFICULT.

 KELLY WAS LIKE A COMIC RELIEF. 

IT WAS NOT FUNNY,
BUT WHEN I GOT IN TROUBLE TALKING AND QUIT-------

  KELLY,
ALWAYS POIGNANTLY FOLLOWED WITH A STATEMENT THAT SEEMED TO

COINCIDE NICELY WITH WHAT I WAS SAYING.

 NOT AN INTERPRETATION BUT EASILY RELATED. 

 TO ME IT MEANT SHE UNDERSTOOD WHAT I WAS SAYING 

 WHICH IN ITSELF IS A TASK.

 IT WAS A TRUE HELP IN ME NOT WALKING OUT ON MANY OF OCCASIONS.

YOU SEE,
LORD,
I FEEL I AM INFLICTING MY DISEASE ON OTHERS.

 LORD,

I DID NOT ASK FOR THIS DISEASE AND KNOW ONE ELSE WITH ALS DID.

 YET,
AT THE ALS MEETING MOST OF THEM
WERE NOT PARTICIPATING WITH OTHERS

 OUTSIDE THEIR CARE GIVERS. 

 I AM QUITE A UNIQUE BIRD.

 I STILL WANT TO STAY THE SAME AND NOT STOP PARTICIPATING.

I STILL WANT TO GET TO THINGS,
EVEN IF I HAVE TO BE DRAGGED THERE.

 I HAVE ALWAYS BEEN A CREATURE WITH OTHERS.

 I HAVE BEEN ACTIVE AND LOVED OTHERS.

 I LOVE TO EXCHANGE IDEAS AND LEARN AND DISCUSS

YOU LEARN 10 TIMES AS MUCH FROM OTHERS AND IT IS REAL.

 IT IS NOT TV OR A BOOK,

 OF COURSE YOU CAN LEARN FROM THOSE, 

 BUT YOU CAN LEARN THE REAL STUFF FROM OTHERS. 

 YOUR CHILDREN ARE SO WONDERFUL

 YOU CREATED US TO BE RELATIONAL,

I AM AFRAID THIS ALS 

 IS MAKING ME DOUBT MY PLACE IN IT ALL.

 DO I STILL HAVE STUFF TO GIVE,

  

 I KNOW I TAKE AWAY MORE THAN I GIVE.

 BUT LORD WOULD IT BE EASIER FOR OTHERS,

IF I WOULD BOW OUT AND NOT PARTICIPATE.

IS IT PAINFUL FOR THEM TO SEE ME. 

IS IT MORE  OF THEIR WORRY,
THAN ABILITY 

 TO SEE ME STILL FUNCTIONING.

 IT IS A DIFFICULT DISEASE.

 YOU CONTINUE TO LOSE FUNCTIONING.

MAYBE PEOPLE WOULD FEEL MORE COMFORTABLE IF THEY WOULD NOT HAVE TO INTERACT WITH ME!

I WAS EMOTIONALLY WORN OUT 

 WORRYING ABOUT HOW PEOPLE FELT ABOUT ME TRYING TO TALK 

AND MAKE A POINT AND NOT KNOWING WHEN I OPENED UP MY MOUTH ,
IF ANYTHING WOULD COME OUT.

WHEN AM I GOING TO FEEL THE MIRACLE OF LIFE,

IT IS ALL PAINFUL, SO PAINFUL,

I LOOK FORWARD TO BEING WITH EVERYONE,

THEN IT IS SO DIFFERENT

I QUESTION MY EXISTENCE.

LORD PLEASE HELP ME UNDERSTAND 

YOU SENT YOUR ANGEL MINNY

THANK YOU DEAR LORD!!!

MINNY FINALLY CAME,

  

 I HAVE MISSED HER SO.

 WE HAVE SO MUCH FUN!

 SHE HAS HAD A WHOLE LOT TO DEAL WITH.

 HER TWO DAUGHTERS HAVE BEEN VERY ILL.

  

 LINDA HAS CANCER AND IS PUTTING UP THE GOOD FIGHT!

HER SISTER-IN-LAW AND HER DAUGHTER DIED THE SAME DAY THIS WEEK!

 THE MOM DIED AND THE DAUGHTER WENT INTO SHOCK AND HAD A HEART ATTACK

  

 AND DIED AFTER HEARING THE NEWS OF HER MOTHER.

 HOW TRAGIC?

  

 MY DEAR FRIEND KAREN PASSED AWAY LAST WEEK AND VICKI

THEN CARLA'S MOM WENT TO BE WITH YOU THIS WEEK!

 WHAT A CROWD YOU HAVE IN HEAVEN.

 I WISH I COULD SAY I AM LOOKING FORWARD TO JOINING YOU 

 BUT AS THEY PUT UP THE GOOD FIGHT 

SO WILL i

HA! HA!

I GUESS THAT LITTLE i SLIPPED IN THERE A SECOND TIME EVEN.

 I DON'T KNOW WHAT THESE CRAZY HANDS WILL DO.

 MINNY TOLD ME ABOUT HER NIECE WHO HAD THE HEART ATTACK.

 SHE LIKED TO COOK AND SO TOOK IT OUT AND WALKED AMONG THE HOMELESS AND FED THEM.

 IMAGINE IF I WOULD LIKED TO COOK

 I DON'T THINK I WOULD DO THAT.

 AT LEAST NOW A DAYS

WITH THE COST OF FOOD.

 YOU KNOW THAT IS WHAT GOT ME AWAKE TONIGHT.

 HOW COMFORTABLE I FEEL WITH ALL KINDS OF PEOPLE!

 NOT MANY PEOPLE CAN HANDLE DIFFERENT PEOPLE.

 THE MENTALLY CHALLENGED

 THE TERMINALLY ILL CANCER PATIENT

AT LEAST WITH MANY DISEASES THERE IS TREATMENT TO HELP!

 NOT WITH THE ONE YOU PICKED FOR ME

 IT IS EXTREME

  

 BUT MAYBE THIS IS THE WAY YOU ARE GIVING ME AN EXTREME MAKE OVER.

 I WOULD HAVE RATHER HAD THE 

 THE EXTREME MAKE OVER FROM TV

BACK TO PEOPLE

  

 HOW COME SOME PEOPLE SEE NO DIFFERENCES AND OTHERS SEE

 ALL THE DIFFERENCES?

 YOU KNOW I LEARNED MOST OF MY SURVIVAL SKILLS FROM THE HOMELESS I HAVE RUN IN CONTACT WITH.

 THEY TAUGHT ME HOW TO GET TOILET TISSUE WITH NO MONEY!

 HOW TO GET WATER WITH NO WATER!

THEY TAUGHT ME HOW TO STORE THINGS WITH NO HOME.

 THEY TAUGHT ME HOW TO PROTECT MYSELF FROM THE ELEMENTS OUT ON THE STREET.

 YOU KNOW I EVEN LEARNED A SKILL OR TWO FROM PIMPS AND PROSTITUTES.

 SOME HAVE A HEART DEEP DOWN INSIDE. 

 I ALWAYS KNEW THE ONES WHO WERE SENSITIVE.

I GUESS LORD,
I HAVE LEARNED FROM THE CHALLENGES YOU SENT MY WAY?

 I HAVE NOT RUN FROM THEM.

 I GUESS MINNY'S NIECE,
GOT ME TO SPEAK ABOUT THIS. 

 LORD I AM PUTTING OUT A CALENDAR TO HAVE PEOPLE SIGN UP TO HELP ME.

 I NEED A LOT OF HELP TO DOWNSIZE

 AND MAKE THINGS PRACTICAL FOR HOW I AM ABOUT TO LIVE. 

 NOTICED I SAID HOW I AM ABOUT TO LIVE NOT DIE.

 I KNOW I NEED TO TAKE STALK OF THINGS.

 BUT I NEED HUMOR AND FUN,
LIKE WHEN MINNY HELPS ME!

 SHE LEARNS FROM ME AND I LEARN FROM HER. 

 WE SHARE THIS LIFE. 

 KAREN LEARNS FROM ME AND I LEARN FROM HER. 

  

 WE SHARE THIS LIFE. 

 TOM LEARNS FROM ME AND I LEARN FROM HIM.

 AND WE SHARE THIS LIFE.

 CONNIE LEARNS FROM ME AND I LEARN FROM HER.

 AND WE SHARE THIS LIFE.

 THAT IS HOW I HANDLE THINGS THE BEST 

 SHARING THE GOOD, THE BAD AND THE UGLY.

 IS THAT WHAT YOU WANT US TO DO.

 IS THAT HOW I AM SUPPOSE TO LIVE?

 TAKE EACH CHALLENGE AND LEARN SOMETHING NEW!!!

 EVEN IF I DON'T WANT THIS ALS

 IT IS ANOTHER OPPORTUNITY TO LIVE MY LIFE AS I ALWAYS HAVE.

 ARE YOU TELLING ME THIS SHOULD BE FAMILIAR.

ARE YOU TELLING ME THIS DOWN HILL BATTLE WITH ALS

 SHOULD BE FAMILIAR.

WHat were you thinking?

LORD I NEED YOU

MY DEAREST LORD

I WOULD LIKE YOU TO TAKE OVER!!!!

 THINGS ARE TOO DIFFICULT TO HANDLE

AND 

TOO BIG FOR MAN TO HANDLE!

MY TENANT

MY WATER BILL

 MY TAXES

 MY HOUSE STUFF

  

 NFC

 A WHEEL CHAIR

 A SPEAKING DEVICE

 RIDES PLACES

 MEALS AND FOOD

 PAPERWORK

 BOOKS

 TOOLS

 LOCKS

 BATHROOM FAN

 CALENDAR

 EMAILS 

MEDICAL BILLS

DENTAL BILLS

 INTEREST FREE LOANS PAID OFF IN TIME

 LIFE INSURANCE

CLOTHES

 LIFE SHOULD BE ENJOYING THINGS A LITTLE!

I AM TRYING TO TURN THESE OVER TO YOU!

 YOU SAY WE SHOULD HELP OURSELVES AND DO WHAT WE CAN.

  

 I AM TRYING,

 BUT ALL THESE THINGS TAKE PLANNING, CALLING, SPEAKING

DOING

 I NEED HELP!!!

 THERE HAS TO BE A BETTER METHOD

THAN ME UP AT NIGHT,

ALONE 

TRYING TO FIGURE OUT WHAT TO DO.

TURN IT OVER TO GOD, PEOPLE SAY!

 THEN I FEEL  THEY JUDGE ME

AND 

ASK WHY ARE YOU NOT DOING THINGS RIGHT?

 WHY DON'T YOU DO THINGS BETTER?

 HOW COULD YOU LET THINGS GET OUT OF HAND?

  

 WHY DIDN'T YOU LET US KNOW AHEAD OF TIME?

 DON'T TELL US 

 WE DON'T WANT TO DEAL WITH THIS.

THIS IS YOUR PROBLEM NOT MINE.

YOU CAN'T DEPEND ON GOD TO FIX EVERYTHING 

YOU HAVE TO DO THINGS YOURSELF.

WHY DON'T YOU JUST DEAL WITH IT. 

  

 WHOOPS DON'T WORRY ABOUT IT.

 MAYBE YOU ARE ELIGIBLE FOR SOMEONE ELSE'S HELP!

MAYBE THE GOVERNMENT!

 MAYBE HEALTH CARE!

 MAYBE SUBSIDES!

MAYBE SOCIAL SERVICES!

  

MAYBE CHURCHES!

WE HAVE HELPED YOU BEFORE YOUR LIMIT IS UP

 YOU ARE  TOO POOR TO PAY YOUR WAY

TOO RICH TO QUALIFY FOR THIS AND THAT.

GET YOUR HOUSE IN ORDER!!

 YOU ARE GOING TO DIE.

 YOU HAVE ALS

NOT YOU ARE GOING TO LIVE WITH ALS

 HOW DO YOU DEAL WITH THAT.

DON'T LIVE YOUR LIFE AS YOU WERE, 

YOU CAN'T DO IT!

MOVE, GIVE UP EVERYTHING, BACK OFF

 YOU CAN NOT TALK.

 WHAT IF THIS WAS YOUR NEW BABY!

WOULDN'T YOU WANT TO GIVE THEM EVERY OPPORTUNITY. 

GIVE THEM WHAT THEY NEED.

WELL GOD 

 I AM YOUR CHILD.

  

 WHY BECAUSE I AM OLDER,

DO PEOPLE WANT TO DISMISS ME!

 IS IT THAT 

PEOPLE CAN'T FACE THEY OWN MORTALITY.

  

 IS THAT EVERYONE IS DEALING WITH AS MUCH AS THEY CAN HANDLE.

ASK AND YOU SHALL RECEIVE 

DON'T ASK WE CAN NOT BE BOTHERED.

 WHY DO I LIVE ALONE 

 WITHOUT A COMPANION OR A SPOUSE  

  TO TAKE CARE OF ME.

 HOW COULD I HAVE ALL THESE PROBLEMS AND DARE TO LIVE ALONE. 

 DEAL WITH IT,

  MOVE AWAY!

TAKE CARE, 

 WE LOVE YOU!

 LIFE IS A TOTAL CONTRADICTION

 THE BIBLE CONSIST OF CONTRADICTIONS

 I AM SO CONFUSED

 BUT LORD

 EVERYONE WHO HELPS ME 

I ENJOY EMENSELY

I AM SO THANKFUL

 AND ENJOY GOOD HUMOR

 THIS IS SOOOO BIG

 BUT NOT BIGGER THAN OTHERS WHO ARE DISABLED.

 WHY DO PEOPLE LOOK AT THIS SO GRIMLY.

 DO OTHER ALS PATIENTS FEEL THIS WAY.

SO CONFUSED, SO OUT OF SYNC

DEAR LORD I HAVE BEGUN TO DESCRIBE MY DILEMMA

IT IS TOO MUCH, 

 I GOT IT DOWN

 NOW I LEAVE IT TO YOU TO TANGLE WITH

 PLEASE LORD SHOW ME THE WAY

 

  

 

 

 

I BLESS YOU GOD

THANK YOU A MILLIONS TIMES OVER

LORD

 I WAS ABLE TO GO TO
MIKE AND BETH'S  

  WEDDING

  

 OH HOW BEAUTIFUL!

MY DEAR FRIEND,
CONNIE AND HER BELOVED FAMILY

 ALL CELEBRATED 

  

 A TRULY BEAUTIFUL EVENT.

  

 WE DON'T REALIZE HOW MEANINGFUL

  

 THESE CHERISHED TIMES ARE.

 I AM SO THANKFUL LORD THAT I WAS ABLE TO GO!

 MY SON, GREG WAS IN THE WEDDING AND SIGNIFIED

 THE 28 YEAR FRIENDSHIP,

 CONNIE AND I HAVE HAD.

 ED WOULD BE SO PROUD!

 I KNOW HE WAS THERE WITH YOUR BLESSING.

 LOVELY CARA AND BEN ARE WITH CHILD.

 YOU GIVE SO MUCH LORD!

 I AM OVERWHELMED!

 GREG AND BRENT MADE IT POSSIBLE FOR ME TO ATTEND.

 WHO SAID I COULD NOT LIVE WITHOUT MY BRAND NEW CAR. 

  WEEP! WEEP!

 LORD YOU GIVE SO MUCH,

WHY SHOULD I EVER BE SORROWFUL,
I CAN'T DRIVE

YOU WILL PROVIDE THE WAY!

 NO MATTER HOW DIFFICULT.

I GOT TO THE SUPPORT GROUP ON SUNDAY.

 THAT WAS A MIRACLE

 DICK PROVIDED, A SAFE CAR FOR US TO TRAVEL IN

 THAT SHOWS HOW HARD YOU WORK.

ANNIE GRACE WAS BAPTIZED LAST WEEK

AND I WAS THERE  FOR THAT.

  

 CHILDREN MIGHT NOT REALIZE HOW MUCH A GIFT

 TO BE LIKE FAMILY- TO THEIR FRIENDS!

 IN THE LAST TWO WEEK-ENDS

EACH OF MY SON'S FRIENDS HAVE EMBRACED ME LIKE

I WAS VERY SPECIAL TO THEM, LIKE THEIR PARENTS.

 MY FAMILY SURELY GROWS,
BUT MAYBE THAT HAS BEEN ALL ALONG.

I HAVE SPENT WEDDINGS AND HOLIDAYS WITH MY FRIENDS AND THEIR FAMILIES.

 I AM TRULY BLESSED.

 WHEN WE KNOW WE DON'T HAVE LONG ON THIS EARTH WE REALLY DO APPRECIATE EVERY LITTLE THING.

 I EVEN GAINED ANOTHER FAMILY!

 BETH'S FAMILY

 THEY ALL EMBRACED ME SO BEAUTIFULLY!

 OH LORD HOW HONORED AM I TO TOUCH AS MANY PEOPLE AS I DO 

IN YOUR NAME

LORD.

I AM TRULY BLESSED TO BE ABLE TO STAND AND WALK ANOTHER DAY!

MY PAIN IS GREAT AND I FEEL I WON'T WALK FOR LONG.

  

 PLEASE LORD STAY WITH ME

 I AM SUFFERING LORD AND TRYING TO HOLD IT TOGETHER.

MY LEGS AND ARMS ARE PULSING SO HARD. 

I TRIED TO DANCE ONE DANCE.

I DO NOT KNOW WHAT THE SPASMS MEAN.

I CAN'T SLEEP.

 I FORGOT THE ELECTRIC CORD TO MY BI-PAP MACHINE.

LORD ALL THIS IS NEW TO ME AND I AM MAKING MISTAKES 

 BECAUSE I TIRE OUT AND HAVE DIFFICULTY PACKING.

I AM BOUND TO MAKE MISTAKES

 I NEED YOUR GUIDING HAND TO SHOW ME THE WAY.

  

I HAVE DIFFICULTY HOLDING THINGS 

AND 

THREW AWAY ALL MY MONEY AND CARDS.

OH WELL, I GUESS I KEEP LEARNING LESSONS. 

 LET OTHER PEOPLE HELP

 ASK OTHER PEOPLE TO HELP

LORD PLEASE HELP ME TO HELP PEOPLE BE NEAR ME.

  

I KNOW PEOPLE ARE SCARED OF THIS DISEASE.

 BUT I AM STILL ME AND I WON'T BITE!

 I NEED OTHERS VERY MUCH
LORD
HELP ME SHARE WITH THEM.

 LORD SEND ME AS MANY ANGELS AS YOU WANT 

I KNOW YOU ARE IN CHARGE

 BUT LORD, BUT LORD WOULD YOU HURRY UP

 I AM MAKING MISTAKES.

Demise

Hi Jane,

PALS is for patients and caregivers.  PALS stands for People with ALS.

I’ve read some of your blog and I fully support you in continuing to be in charge of your life!  What was it that Mark Twain said?  Something like “rumors of my demise are a bit premature”?  I can’t quite remember it but I got the gist of it.  This is about living – with whatever comes our way. 

God Bless you,

Ellen

I GOT MY BI-PAP MACHINE

PRAISE THE LORD

I HAD BAD ENOUGH LUNGS TO GET MY BI=PAP MACHINE. 

 LAST NIGHT WAS THE FIRST NIGHT I SLEPT THE WHOLE NIGHT IN MONTHS!

 I USED THE BI-PAP  

 AND IT IS WORKING TO HELP ME RELAX.

 I AM WORKING ON AN ALS BLOG 

 IN A PLACE CALLED 

 ""PatientsLikeMe"  

MY HANDLE IS 

Cricketjbs

MY TITLE IS  

JUST DIAGNOSED IN THE LAST 2 MONTH'S 

AND  HAVING A

DIFFICULT TIME ADJUSTING. 

I CRY EVERY TIME I SEE SOMEONE NEW

I HAVE TO TELL THEM WHAT IS HAPPENING.

THIS IS SO EMOTIONAL 

AND DIFFICULT ON EVERYONE. 

I AM GETTING WEAKER

IN MY BODY BUT STRONGER IN MY MIND.

MY RIGHT ARM IS MUCH WEAKER THAN MY LEFT 

AND I  AM TYPING IN ALL CAPS 

BECAUSE I

CAN'T GET COORDINATED ENOUGH 

TO CHANGE TOO MANY KEYS. 

I AM ALSO HOLDING DOWN THE KEYS LONGER. 

IF ANYONE KNOWS COMPUTER PROGRAMS TO HELP TYPING PLEASE LET ME KNOW.

I LOVE YOU ALL FOR PUTTING UP WITH ME. 

I PRAISE YOU LORD FOR GIVING ME THE STRENGTH TO SHARE.  

THIS IS NOT A ROSY ROAD !!!!!