SPASMS HELP, I NEED A BANANA SPLIT

MAYBE GOD

JUST MAYBE

 "BILL"

WAS RIGHT

I NEED POTASSIUM

  

 MAYBE I CAN JUST GET IT FROM

A BANANA SPLIT 

  THAT SEEMS LIKE A REASONABLE WAY TO GO.

 I CAN NOT GET ANYONE TO TAKE ME!

OH WELL,

  

 NOT DRIVING IS THE PITS !!

  I PICK MY POISON TO GET POTASSIUM
AND THEN 
I CAN'T GET A RIDE

DO YOU REALLY THINK POTASSIUM WILL STOP THESE SPASMS?

I NEED TO PREPARE FOR 

NEIGHBORHOOD FRIENDS CARE MEETING TONIGHT 

 AT THE CHURCH

I HAVE TO GIVE THIS PROGRAM

WHAT I

HAVE

LEFT,

  

 WHICH IS NOT MUCH!

I CANNOT TALK !!!

AND

 I AM THE ONE WITH A

SUPERCALIFRAGILISTIC -ESPIALIDOCIOUS

NEED !!!

VERY THANKFUL ABOUT MY SPECIAL GUEST

I HAD A SPECIAL GUEST TODAY.  

IT MEANT MORE TO ME THAN ANYTHING. 

YOU KNOW HOW IT IS WHEN SOMEONE TRIES TO UNDERSTAND YOU

AND 

IT IS DIFFICULT TO EXPLAIN YOURSELF TO YOUR OWN FAMILY,

LET ALONE SOMEONE OUTSIDE THE FAMILY.  

WELL AT LAST I HAVE A CHANCE.

I AM SO RELIEVED. 

NOW MAYBE I WILL HAVE A CHANCE TO MAKE SENSE.   

  

 THERE ARE CERTAIN THINGS

THAT HAVE BEEN SO IMPORTANT TO ME

IN THE PAST SEVERAL YEARS

NOW I CAN TELL THIS SPECIAL PERSON 

  

HOW MUCH CERTAIN THINGS MEAN TO ME

 AND 

THEY WILL BE ABLE TO APPRECIATE 

 HOW MUCH THINGS MEANT TO ME.

YOU CAN NEVER REPAY A DEBT,

THAT IS BIGGER THAN LIFE!

BUT YOU CAN IMAGINE THAT YOU CAN REPAY THAT DEBT!

NOW THAT GIFT FROM GOD TO ME 

WILL SEE JUST WHAT I ALWAYS WANTED TO DO.

WHETHER I CAN EVER DO WHAT I WANT OR NOT

THIS VERY SPECIAL PERSON WILL KNOW IN MY HEART 

  I WANTED IT TO BE.

A Little Day

My Dearest LORD

I AM BETTER

I CAN BREATHE

  

 I HAVE SLEPT A BUNCH TODAY

 MAYBE THAT IS WHAT I NEED  

 I FEEL OPEN  

  

YOU HAVE ALL GOD'S KINGDOM WORKING TOGETHER

 YOU GOT ME A RIDE HOME FROM CHURCH WITH

OF ALL THINGS 

 A NEW GRANDMOTHER

MY DEAREST EDIE

YOU GOT ME TO McDONALDS

WITH BRENT  

HE HELPED ME GET SOME MEDICINE

 THEN  I SLEPT.

THEN HAD RICH WRITE ME ABOUT THE REUNION

  

 AND HAD ME INTRODUCE LINDA TO RICH

WHAT A BRILLIANT IDEA LORD!

YOU ARE WORKING OVERTIME

 THEN YOU HAD GREG MAKE RESERVATIONS FOR ME TO GO TO ENGLAND

  HOW SMART WAS THAT

THEN YOU HAD ME INTRODUCE LAUREL TO GREG

I PRAISE YOU LORD

THIS WAS MAGNIFICENT   

  

 ALL WHILE  I SLEPT!!!  

  

 THERE IS ONLY ON THING LORD.   

THEY SAID MAYBE I SHOULD GET SOME MORE POTASSIUM BECAUSE OF MY SPASMS

  

 WELL LORD 

I REALLY TRIED TO GET SOMEONE 

TO TAKE ME TO DAIRY QUEEN  

TO GET A BANANA SPLIT

YOU REALLY DO ASK FOR THE IMPOSSIBLE

I COULD NOT FIND ANYONE 

I AM SORRY, LORD

NO BANANA SPLIT

I GUESS POTASSIUM WILL HAVE TO WAIT!!!

HAPPINESS AT LAST

THANK YOU GOD

I AM MORE RESTED

 THE SPASM ARE NOT AS BAD

I TOOK SOME MEDICINE THE DOCTOR GAVE ME AND IT HELPED

  MAYBE NOW I KNOW I CAN TRUST SOME OF THE MEDICINE.  

 MAYBE I DID NOT TRUST,

THAT THE MEDICINE WOULD NOT HELP ME GET AWAKE

IF I STOPPED BREATHING.

I AM ACTUALLY BREATHING EASIER AND MY MUSCLES ARE NOT SO SORE.

MAYBE I SHOULD DO IT MORE OFTEN.

  POOR BRENT, HE IS SO TIRED FROM HIS LONG TRIP THIS WEEK.

I PRAY GOD,

THAT YOU  HOLD HIM IN THE PALM OF YOUR HAND

THROUGH YOU HE CAN BECOME STRONG AGAIN

I WORRY ABOUT HIM SO MUCH

HE IS VERY SICK ALSO

 THE TWO OF US TRY TO HELP EACH OTHER

BE WITH US IN OUR STRUGGLE

 HELP US TO HAVE GOOD TIMES AND JOYOUS TIMES IN STEAD OF ALL PAIN. 

HOW ABOUT ONE MORE GOOD ROCK CONCERT. 

WE ENJOYED SHARING THAT TIME IN PITTSBURGH 

 AT THE WALL

PRAISE THE LORD WE HAD THAT SPECIAL TIME.  HE KNEW I WOULD ENJOY IT.

 I DID IMMENSELY

 BUT MOST OF ALL BEING WITH MY SON IN WHAT HE ENJOYED.

THAT IS ONE OF MY GREATEST GIFTS TO MY KIDS,

  I LIKE TO TRY WHAT THEY ENJOY

 I EVEN CONSIDERED  

TRYING ROCK CLIMBING 

RICH AND GREG

REMEMBER AT THE TOURNAMENT IN BALTIMORE!

EVERYBODY HAS ANSWERS WHAT I SHOULD DO

GOD

HOW DO I EXPLAIN

I DON'T KNOW WHAT TO DO !!  

WITH ANYTHING

 MY EATING!!

MY EXERCISE!! 

MY THROWING THINGS AWAY! 

MY GIVING THINGS AWAY!  

MY SELLING THINGS!

MY ENDING MY LIFE SOON AS I KNOW IT!

HURRY UP YOU MIGHT NOT BE ABLE!

WAIT YOU HAVE TIME!

WE DON'T KNOW WHAT WILL HAPPEN TO YOU

WE DON'T KNOW WHEN IT WILL HAPPEN

IT COULD HAPPEN ANY TIME

ORDER A WHEEL CHAIR

DECIDE WHETHER YOU WANT TO HAVE A VENTILATOR OR NOT

DECIDE WHETHER YOU WANT TO LIVE ON YOUR OWN  

OR GO INTO A NURSING HOME  

GOD 

I DON'T LIKE THESE CHOICES

HOW CAN I THINK FAST ENOUGH?

HOW CAN I TELL PEOPLE WHAT I NEED

DON'T ASK TOO MUCH OF PEOPLE 

THEY HAVE TO WORK  

THEY ARE GOING ON VACATION

THEY HAVE THIS TIME

I AM HERE FOR THIS TIME.  

I CAN HELP YOU NOW

WE NEED TO GET RID OF THINGS NOW

I DON'T WANT TO FEEL GUILTY THAT I DID NOT HELP YOU END YOUR LIFE 

I DON'T HAVE TIME TO CLEAN UP AFTER YOU DIE

GOD MAKE THIS STOP!!!

HOW DO ANY OF US MAKE SENSE OF THIS.

HOW FAST IS THIS DISEASE PROGRESSING?

WHAT IS HAPPENING TO ME?

WHY DOES MY ARM CRAMP UP?

DID I DO TOO MUCH OR NOT ENOUGH?

DO I LAY DOWN OR EXERCISE?

DO I GET RID OF STUFF OR FILE IT?

 WILL I NEED IT OR NEVER USE IT?

HOW DO I WORK MY COMPUTER?

DO I PAY TO FIX IT OR LIVE WITH IT?

GOD 

I AM BEING FLOODED WITH DECISIONS TO MAKE

EVERYTHING TAKES A DECISION

WHY CAN'T I JUST ENJOY SOMETHING  

GOD  

 I KNOW THIS IS NOT YOUR PLAN

BUT 

 HOW DO I DEAL WITH THIS.

IT IS PURE ANGUISH!

GOD  

  

 I DON'T WANT TO BE A BURDEN  

  

PLEASE GIVE ME SOME RELIEF

GOD  I THANK YOU 

I JUST HAVE NOT MADE A DECISION 

FOR WHAT!   

GOD, I PRAISE YOU

FOR GIVING ME A CHALLENGE  

  

AT LEAST THAT WHAT PEOPLE SAY I SHOULD DO!

GOD  

 TO HELL WITH IT

JUST GET RID OF THIS

OR 

SHOW ME 

THE WAY, 

THE TRUTH 

AND 

THE LIGHT.

I AM STILL HANGING WITH YOU 

BUT

I DON'T KNOW HOW

I FEEL REFRESHED

IT IS GOING TO BE A BETTER DAY

TODAY AT 9:00 AM

RENEE IS GOING TO COME FROM HOME HEALTH

MAYBE SHE WILL TELL ME WHAT IS HAPPENING TO MY BODY

I DON'T REALLY KNOW WHAT IS HAPPENING TO ME

  

YOU KNOW HOW YOU KNOW WHEN YOU HAVE A PAIN 

THAT YOU DID SOMETHING

TO CAUSE IT.

WELL I HAVE NO F'IN IDEA

WHAT IS HAPPENING

I THOUGHT THIS WAS JUST MY VOICE, BREATHING AND CHOKING

NOW MY ARMS AND LEGS FEEL FUNNY.

I DON'T KNOW WHETHER I DID TOO MUCH

OR 

DID NOT STRETCH ENOUGH OR MOVE ENOUGH  

I DON'T KNOW WHAT TO DO?  

EXERCISE OR LAY DOWN

ALS SCREWS WITH MY MIND

GOD 

 I DON'T LIKE THIS DEAL

 PEOPLE ASK WHAT THEY CAN DO?

I DON'T KNOW

I CAN'T FIGURE OUT!

TAKE ME TO 

McDONALDS

WHY IS EVERYTHING CRAMPING UP THIS IS NEW

DEAR GOD

I WANT THIS TO STOP

HOW DO I COPE 

I HAVE PLANS

I AM GOING TO TRY AND CALL BILL LEWIS TO HELP ME WITH MY COMPUTER EARLY THIS MORNING.

 THEN KRISTIN IS COMING TO PICK ME UP AND TAKE ME TO

DR. AMANDA IN MORGANTOWN

SHE IS MY DENTIST

I KNOW SHE IS GOING TO SAY I NEED

A ROOT CANAL

 BUT LORD 

SHE ONLY GOING TO DESIGN SOMETHING FOR MY 

JAW JERK

[ ANOTHER ALS SYMPTOM] 

WHY GOD WHY IS MY BODY FAILING ME

THANK YOU GOD  

THANK YOU GOD   

I PRAISE YOU, GOD !!  

 I PRAISE YOU, GOD  !!  

I HAVE LOST A LOT 

BUT GOD

 I STILL HAVE MY MIND 

I REALLY DON'T KNOW HOW YOU DID THAT.   

  THAT IS TRULY A MIRACLE

BEWARE OF A CRISIS  

A MIRACLE IS ABOUT TO HAPPEN.

I GUESS THAT IS YOUR MIRACLE  !!! 

I TRULY PRAISE YOU GOD  

I AM ASKING YOU ONE MORE THING

 TOUCH ME AND EVERYONE CONNECTED WITH TO HAVE THE STRENGTH

TO DEAL WITH THIS THING.

I WANT TO TELL YOU A LITTLE STORY:

I BLEW IT LORD!

MY DEAREST JONNA MY MASSAGE THERAPIST,  SHE TRIED SO HARD TO HELP ME

AND I REALLY BLEW IT.  

I BAWLED ALL THROUGH THE MASSAGE.

WE BOTH DID.

IT WAS SO DIFFICULT ON US.  

PLEASE LORD BE WITH US THE NEXT TIME SO I CAN BEHAVE.

I TRUST THAT YOU WILL BE THERE THE NEXT TIME.

 

OH WHAT A BEAUTIFUL MORNING

REMEMBER THAT SONG,GOD?

WELL YOU ARE SPOOFING ME AGAIN!

 I FEEL LIKE I CAN BREATHE AND AM OPEN

 BUT 

MY TOOTH ACHES AND MY RIGHT ARM BIG MUSCLE IS TWITCHING. 

 WHAT DOES THAT MEAN, GOD  

  

 AND OTHER ALS CHALLENGED PEOPLE 

 AM I GOING TO START DROPPING MORE THINGS 

IS THAT THE REASON IT IS DIFFICULT 

TO WORK IN THE KITCHEN 

AND

TO LIFT THINGS AND COOK?

I AM TRYING TO FIGURE THIS OUT

  

 I AM WORRIED ABOUT MY KIDS

  

 IS GREG EATING AND TAKING CARE OF HIMSELF LIKE HE USUALLY DID OR IS HE WORKING AND NOT EATING?

  HAS STACY STARTED SCHOOL AND IS IT TOO MUCH FOR HER?

BRENT IS SUCH A DEAR AND FACES SO MANY CHALLENGES.  PLEASE GOD SUSTAIN HIM. IT IS DO DIFFICULT.

  IS RICH WORKING TOO MANY HOURS THAT HE CAN'T THINK OR EAT. 

  HOW LORD CAN THEY HANDLE ME AND MY BUSINESS?

OH MY, OH MY, OH MY !!!

WHAT WILL MY LITTLE FIRST PRESBYTERIAN CHURCH DO?

WHAT WILL ALL THE CHURCHES IN NEIGHBORHOOD FRIENDS CARE DO?

WHAT WILL CONNIE AND ROY 

 EDIE AND STEVE DO?  

 THIS IS REALLY TOO MUCH FOR EVERYBODY !!!!

WHAT WILL MY LITTLE BIG CITY, FROSTBURG DO?

WHAT WILL EVERYONE DO?

KAREN CAN'T DO IT ALL.

HEY GOD, 

HEY UP THERE, 

I DON'T NEED THIS DISEASE

CAN YOU HURRY UP AND HEAL ME?

I PROMISE I WILL WORK HARD AND NOT WASTE MY LIFE.

I PROMISE TO MAKE NEIGHBORHOOD FRIENDS CARE WORK

MY DEAREST GOD I AM UP AGAIN

HI GOD, 

I AM UP AGAIN BUT MORE RESTED AND NOT SO TORMENTED.

 I GUESS THIS IS 

"MY LITTLE DAY"

 IN THE MIDDLE OF THE NIGHT

THANK YOU FOR BREATHING EASIER 

 AND  

FEELING MORE OPEN!   

IT IS TRULY A BLESSING 

  TO REST IN THE ARMS OF GOD  

REMIND ME WHEN I LOSE THIS CALM

THAT IT WILL COME AGAIN.

I DON'T KNOW WHY I CAN'T REMEMBER THAT

IN TIME OF DURESS

AND FRETFULNESS?  

IT IS ALL I CAN DO  

TO GIVE IT OVER TO YOU AND REST IN THE ARMS OF GOD!

HOW SIMPLE IS THAT. 

THIS IS BIGGER THAN ME, BIGGER THAN MY CHURCH, BIGGER THAN MY FAMILY, BIGGER THAN MY TOWN, BIGGER THAN MY STATE,

HELL GOD!!!

BIGGER THAN THREE STATES

WEST VIRGINIA, MARYLAND AND VIRGINIA

ALL OF WHICH THAT WILL EVENTUALLY TRY AND HELP ME.

WHY DON'T YOU GIVE UP GOD!!!

JUST FIND A CURE FOR 

ALS

LOVE JANE 

BOY DID I OVER DO IT

I DECIDED,

I WOULD DO WHAT I HAD TO

TODAY

LORD

I GUESS YOU ARE TELLING ME, 

YOU ARE IN CHARGE 


WHAT DO YOU MEAN 
GOD? 

I HAD A DIFFICULT BUT WONDERFUL DAY!

WHAT  LORD?

BE THANKFUL

BUT WHY LORD?


BECAUSE
I SAID YOU ARE TO BE THANKFUL

BUT LORD??????


THIS IS UP TO ME!!

I HAVE TO FINISH----

I HAVE TO FINISH----


I TOLD YOU , JANE

I  WHO HAVE DONE A GOOD WORK IN YOU

YEA, LORD , YEA

I KNOW  

BUT IT HAS BEEN 

FIVE YEARS  

WHY IS IT?

EVERY TIME I GET CLOSE 

TO HAVING IT WORK

I HAVE AN

EXTREME ILLNESS ??????

WHAT IS GOING ON LORD??? 

DON'T YOU WANT FROSTBURG TO HAVE THIS?

I ASK YOU,

LORD? 

WHY? WHY?  WHY? 

THAT IS THE ONLY THING
I REALLY WANT


IS FOR PEOPLE TO LISTEN TO 
WHAT EACH OTHER NEED.

CAN'T YOU FIX THIS LORD? 

PLEASE?

I FOUND MY LITTLE DAY , TONIGHT

HELLO GOD!

THANK YOU FOR THIS MOMENT!

 

I CAN BREATHE

 

THE FIRST NIGHT NO ONE HAS STAYED WITH ME

 

I AM DOING IT 

I SLEPT WITH MY MIND RELAXED

 

OF COURSE,  IT IS RACING NOW

 

WITH NEW IDEAS

 

HOW NOT TO BE A BURDEN

I AM SO THANKFUL,

 

GOD IS GIVING ME IDEAS, 

  

HOW NOT TO BE A BURDEN.

 

MY FRIEND,  CAROL

IS TAKING ME TO THE DOCTOR TODAY!

 THIS IS THE FIRST TIME A DEACON FROM MY CHURCH HAS GOTTEN IN ON THIS HYSTERICAL DISEASE.

 

NOW I KNOW MY CHURCH WILL KNOW MY NEEDS.

 

ONCE PEOPLE FIND WHAT I NEED,

 

I KNOW GOD WILL SEND VOLUNTEERS.

 

GOD'S ANGELS.

 THANK YOU GOD!  

 

  WHAT A LITTLE DAY

iT IS EARLY MORNING

HELLO GOD,

I AM STILL HERE

MY HEAD ACHE IS A LITTLE BETTER

BUT I NEED MY NECKBRACE

  I GUESS I DID NOT LAY DOWN ENOUGH YESTERDAY.

 IT IS NOT ENOUGH TO GO SLOW

I MUST LAY DOWN

  STRETCH OUT

HELLO OUT THERE ALS SURVIVORS

TEACH ME WHAT I HAVE TO DO TO PACE MYSELF.  

GOD SAYS:  

 HE IS WORKING OVER TIME ON ME. 

 I GUESS GOD EVEN NEEDS A BREAK FROM ME.

PAIN IN THE MIDDLE OF THE NIGHT! WHERE DID THAT COME FROM?

GOD, HOW COME I AM AWAKE.  I PRAISED YOU AND THANKED YOU.

WHOOPS! 

I KNOW YOU TAUGHT ME BETTER THAN THAT.

GOD SAID,  

CCC

I DID NOT CAUSE THIS

I CAN NOT CONTROL  IT

AND 

I CAN NOT CURE IT !

WHOOPS AGAIN!

I CAN CURE IT

OR 

WILL MAKE IT MORE TOLERABLE

OR

I'LL BE WITH YOU THROUGH IT!

OK  OK  OK

WHICH IS IT?

I AM IN PAIN.

 MY HEAD HURTS, MY LEGS CRAMP WHEN I STRETCH THEM, 

MY NECK HURTS

 AND MY HAND CRAMPS UP SO I CANNOT TYPE.

WHAT IS GOING ON?

I THOUGHT EVERYTHING WAS MADE MADE PERFECT IN YOUR TIME.

COME ON ALREADY!

DO IT.!!!!!!!

WHERE ARE YOU GOD.

MY INDEX FINGER IS STUCK

I GUESS YOU ARE TELLING ME TO REST AND LAY DOWN.

ENOUGH ALREADY

I AM, I AM, I AM

WHOOPS!!!!

YOU ARE.  I KNOW

IT IS THE MIDDLE OF THE NIGHT, WHERE IS MY LITTLE DAY?

I AWOKE PROCESSING THE DAY!

THE FIRST PRESBYTERIAN CHURCH

OF FROSTBURG

WONDERFUL  !!!!

RICH, STACY, SOPHIE AND ANNIE

SURPRISED ME!!!

THEY SHOWED UP AT CHURCH. 

CAROL ADAMS GAVE THE CHILDREN'S SERMON

WITH A DIFFERENT TWIST.

SHE CALLED 

RICH AND HIS FAMILY TO THE FRONT AND GAVE THE CHILDREN'S SERMON

ON 

MEMORIES 

CAN YOU IMAGINE?

THE FIRST TIME THE CHURCH EVER SAW MY GRAND-DAUGHTER'S AND STACY

AND THEN

NOT SEEING RICH SINCE BEFORE HE GOT MARRIED IN 1996.

MEMORIES 

I WAS BLOWN AWAY

THANK YOU GOD

MY DEAR SISTER BARBARA WAS THERE TOO !!!!

SHE SAW THE SIGHT

OF MY KIDS BEING THERE!

 SHE LIVES IN VIRGINIA AND IT WAS THE FIRST TIME,

SHE HAD BEEN THERE IN A YEAR OR TWO.

WHAT A PRECIOUS SISTER, LORD

HER PRAYER WAS TO BLESS THE CONGREGATION FOR THEIR LOVE OF ME.

LORD !!!!

YOU GOT ME TO MY KNEES

HUMBLY

OH LORD,

I PRAISE YOU !!!

I THANK YOU !!!

GUIDE ME THROUGH THIS.

I CAN NOT DO IT ON MY OWN

SUPERCALIFRAGILISTIC -ESPIALIDOCIOUS , ORIGINALLY AUG. 19 AT 3:00am

GOD
YOU DID IT AGAIN.
DO YOU KNOW HE IS ACTUALLY SPEAKING TO ME.

IT IS GETTING MORE DIFFICULT FOR ME TO TYPE.

I KEEP MAKING MISTAKES.
BUT AFTERWARDS i CLEAN IT UP.
AFTER ALL WE HAVE TO BE PRESENTABLE.
GOD AND ME HAVE A SECRET.

HE SAID

I WORRY ABOUT FINDING ALL THE PAPERS WITH "EF"

THEN I TOLD MY KIDS YESTERDAY,

I NEEDED TO GET A POWER OF ATTORNEY

AND i TOLD THE BANK
GREG 
COULD ASK THEM QUESTIONS UNTIL
I GET THAT.



THEN, 

I ASKED GREG

IF HE WANTED ME TO TALK TO DAN ABOUT A TERM LIFE INSURANCE POLICY.

I DON'T WANT TO CAUSE MY FAMILY AND FRIENDS TROUBLE WITH MY BILLS.

I asked GOD
if he would

FIX THIS FOR ME.

SO HE IS GIVING ME IDEAS HOW TO DO THINGS. 

• HOW TO END A HOUSE.

• HOW TO GET RID OF MY JUNK.

• SO MY KIDS WON'T HAVE TO DO IT.

• WHO WOULD WANT ALL MY NICE THINGS.

• WHO WOULD WANT ALL MY NOT SO NICE THINGS.

• HOW DO YOU GIVE UP YOUR HOME.

• AT LEAST IF I DIED IN ONE OF THOSE ACCIDENTS

AND

Then,

• I WOULD NOT HAVE HAD TO WORRY ABOUT BEING A BURDEN.

 

I GOT TO FIX THIS GOD

I DON'T WANT TO BE ANY TROUBLE.

I TOOK CARE OF MY PARENTS

AND 

IT WAS ALL I COULD HANDLE.

I DON'T WANT TO DO THAT TO MY KIDS.

PLEASE HELP ME GOD

IT ISSSSSS SUNDAY

I am going to Church today.  I am nervous,

I have not been there since I was diagnosed with ALS.  

I want to thank them

for allowing me to serve them 

AS A MEMBER OF SESSION

and 

COMMISSIONER TO PRESBYTERY.

i had a ball  !!!! 

• This is the weird thing. 
• I always knew that was going to be my only time to serve in both these posts.  
• They meant so much to me.  
• I treasured every meeting. 
• I thought it was my privilege to serve GOD, by being an officer in the church. 
• When I was a little girl, I thought that was so important. 
• I wanted to do the best job I could. 
• As in many churches there was a difficult times and I wanted to leave and quit. 

GOD, said to me,

I put you there now just hold your head high and I will see you through.  

HE DID!

I was CHALLENGED and did nothing wrong. 

He said, 

Don't defend yourself and I will see you through. 

I said 

GOD 

 HOW ON EARTH DO I DO THAT?

  HE SAID,  

THIS IS BIGGER THAN YOU

AND

I CAN DO ALL THINGS THROUGH

GOD 

WHO STRENGTHENS ME.

I SAID, 

COME ON NOW,

THIS IS IMPOSSIBLE!

THINGS WON'T GET BETTER.

BOY WAS I WRONG. 

IT WAS THE RIGHT THING TO DO.

KEEP MY MOUTH SHUT. 

 EVERYTHING WILL BE MADE WHOLE.

WELL GOD???

IS THAT WHAT YOU WANT ME TO DO NOW?

RECOGNIZE THAT YOU ARE IN CHARGE 

AND 

GO TO CHURCH 

AND LET 

YOU HOLD ME IN THE PALM OF YOUR HANDS.

I SEE!!!!!

THAT IS WHAT I AM SUPPOSE TO DO?

I WILL TRY.

EXTREME EMOTIONS

DEAR GOD,

HELP ME LET MY FAMILY KNOW,
I AM STILL LIVING.
MY LIFE IS MY LIFE.
MY CHOICES ARE MY CHOICES.

PLEASE RESPECT THAT.

I DON'T HAVE MUCH BUT IT IS ME.
I HAVE TO RECOGNIZE IT IS WITH ME.

I HAVE NOT HAD ENOUGH TIME TO ADJUST.

THE DOCTORS SAID,
" THIS IS NOT THE END.
I CAN LIVE ALONE.
I MIGHT DRIVE AGAIN. LIKELY NOT, BUT DON'T COUNT ME OUT.

MY CHOICES ARE MY CHOICES.

EVERYTHING HAS NOT BEEN DECIDED.
I MAY BE EXHAUSTED RIGHT NOW AND NEED TO REST,
BUT WHEN I AM RESTED,
I AM MY OLD SELF.

IF I HOARD THINGS LET ME HOARD.
I NEED TO WORK THAT OUT.

IF I KEEP THINGS YOU WOULD NOT
IT IS BECAUSE I HAVE A PLAN.

YOUR PLANS DO NOT CHANGE IMMEDIATELY,
WHEN YOU GET A DEATH SENTENCE.


I HAVE TO COME TO
TERMS
AND
DECISIONS.

GET PERMISSION BEFORE YOU TAKE OVER.

I DO HAVE DESIRES AND NEEDS
THAT NEED TO BE HONORED.
I WILL RUN THIS SHOW ABOUT MY LIFE.

WHEN I CAN'T
THEN YOU WILL BE GIVEN

POWER OF ATTORNEY

AND

THEN YOU CAN MAKE THESE DECISIONS.

RIGHT NOW THESE DECISIONS ARE A PART OF MY LIVING.

I NEED THAT TO SURVIVE.

EXTREME MAKEOVER

HELLO ALL


I WENT TO MY FIRST ALS CLINIC
IN MORGANTOWN
YESTERDAY


I LEARNED SO MUCH ABOUT ME.

THEY DID NOT CHANGE MY DIAGNOSIS

BUT THEY DID GIVE ME HOPE AND A PLACE TO CALL OR BLOG.


I GUESS IT IS FUNNY THAT I HAND OUT CARDS
BUT THAT
SAVES ME FROM TALKING
AND
THEY GET TO THE BOTTOM LINE.

I WAS VERY TIRED 9:00AM -3:30

THE MOST IMPORTANT THING
I LEARNED

THAT,

I AM NOT DEMENTED

FOX ALL NIGHT

RED EYE HERE AGAIN. I AM IN GOOD COMPANY . " GREG-A- LOGUE" I am in good company.
I go to Morgantown to an ALS multi-disciplinary Clinic. I find out how extensive I have this "F-'in Disease".

With ALS you can't yell, cry or scream.. I guess I could throw things but I am too weak. Man this disease takes over all. Takes All does not have mercy.

THIS IS NOT A NICE NIGHT. HOW DOES ONE LIVE GOD WHEN ALL IS TAKEN AWAY?


THIS IS NOT MY LITTLE DAY.
ISN'T IT IRONIC THAT I WAKE UP TO A COMEDY.

[RED EYE?]

GOD YOU WON'T LET ME GO TOO DEEP.

A COMEDY?

YOU DON'T WANT ME TO GO OFF THE DEEP END!!!!!

I AM SHOCKED GOD

BOY,

WHAT A SURPRISE!!!


GOD HATH PROVIDED ME
"A LITTLE DAY IN THE MIDDLE OF THE NIGHT!!!!"



I AWOKE AT 5:30 AM
AND JUST KNEW THIS WAS IT.


A NEW DAY.

THAT LITTLE DAY


I CAN BREATHE, I CAN SWALLOW,

I CAN REJOICE.


REJOICE! REJOICE! REJOICE!

THIS IS ALL I ASK

NOT MUCH, LORD


LORD HELP ME HAVE A LITTLE MORE TIME!


TO BE WITH MY FAMILY,

MY SONS

RICH, BRENT AND GREG

STACY AND MY TWO GRAND-DAUGHTERS

CONNIE

EDIE

BARBARA AND JOHNNY

BELKIS

MY CHURCH FAMILY



WAIT A MINUTE GOD!

YOU HAVE ME BEING

SOOOOO, THANKFUL


I HAVE ONE THING
FOR YOU TO FIGURE OUT.

HOW, JUST HOW

AM I
GOING TO MAKE

"NEIGHBORHOOD FRIENDS CARE"

WORK?


I NEED TO GET IT ACROSS TO PEOPLE

THIS IS IMPORTANT.


YOU NEED TO BE MADE AWARE OF OTHER'S NEEDS
SO THAT YOU COULD SO EASILY HELP

IF YOU WOULD


JUST PAY ATTENTION.

My Dearest Friends and Family

My "EF" just let me get through on facebook. The first time I have written on my wall. I copied and pasted. All summer I could not understand why I could not think to add anything like the rest of you with smart quips and quotes and interests. I have not had many of your exciting interests and travels and was feeling bad about writing something cute.

Well now I know.
I was told on August 3, 2010 that I have ALS.

I could not drive or live alone and I was going to die. Poof in 20 minutes.

There has to be a better way.

IF you have ALS and can figure out what an easier way is to tell someone this,
please respond!
I am going to have to write a MANUAL about
how to tell someone this news.

I have a headache and am up. At least, I am not crying.

I have temporal lobe ALS, Bulbar ALS, and extremities ALS.
What ever all that means.
I was told to order a wheel chair and soon I would probably need a feed tube and a ventilator.



That is the reason, I am blogging to relieve a little bit of the tension.
This is not my light-hearted posts,
but
GOD said,

Show the world the truth of the matter.
This is difficult and I am tired.

I don't want to wreck everybody else's life but,
I am trying to cope without crying and laughing all the time.

Because:

I choke.

GOD GETS A GOLD STAR

Well!!!!!
I slept last night till this morning.
This was the first time.
I feel open and refreshed, I can breathe.
I had a good day!


WHAT?

GOD is GOOD????

JANE!!!!!!!!!!!!

YOU HAVE A FUNNY KIND OF WAY DEALING WITH DEATH.


YOU, GO OUT AND TELL
one of YOUR CLOSEST FRIENDS,
BOB LEWIS
YOUR MECHANIC,
WHO HAS ALWAYS BEEN DEAR TO YOU,
THAT YOU ARE GOING TO DIE.

WHO DIED AND MADE YOU GOD?

I THOUGHT THAT WAS MY JOB!

WELL GOD!!!

• I COULD NOT HAVE SURVIVED MY EXTREME LIFE
• WITHOUT BOB BEING THERE.

• HE HAS SEEN ME THROUGH MOST OF THEM AND
  
• BEEN IN ON QUITE A FEW.

• REMEMBER WHEN I WAS IN THE HOSPITAL IN BALTIMORE.
• 
  
• BOB HAD MY CAR TO WORK ON.
  
• WHEN I GOT BACK AND CALLED him
  
• TO GET MY CAR.

• HE SAID, "DO YOU WANT THE BAD NEWS OR THE GOOD NEWS."
  

I SAID, " THE BAD NEWS. "

• HE SAID, "A TREE FELL DOWN ON YOUR CAR."
  

I SAID, "THEN WHAT IS THE GOOD NEWS."

• HE SAID, "A TREE FELL DOWN ON TOUR CAR."

I ASK YOU, IS THAT A TRUE FRIEND?
GOD