GOD DID I TAKE A BREAK FROM YOU OR DID YOU TAKE A BREAK

DEAR LORD I HAVE BEEN SO TIRED

I AM TRULY BLESSED 

 FOR ALL THE HELP AND FRIENDS

I HAVE RECEIVED

 I KNOW THAT IT IS YOU LORD

THAT MAKE ALL THIS OVER WHELMING

 LOVE THAT HAS BEEN SHOWN ME

BUT LORD FOR ALL THE OTHER ALS PATIENTS

 I WRITE THIS BLOG TO SHOW 

 WHAT IT IS REALLY LIKE

TO HAVE ALS

 YOU DON'T KNOW ABOUT ONE SECOND OF YOUR LIFE

 THINGS DON'T WARN YOU JUST LOOSE

STRENGTH 

IN ONE PLACE OR THE OTHER

 AND ONE CAN'T FACE IT

 LIKE I KNOW MYSELF

 I SPILL WATER PITCHER

 AND GLASS MANY TIMES A DAY OR NIGHT

 IN BED ALL OVER ME.

 I STILL DON'T WANT TO GIVE UP MY INDEPENDENCE  


 I REACH FOR MY CUP A SPILL IT ALL OVER ME IN BED

AND. I DON'T ASK THEM TO CHANGE THE BED

 I JUST ASK FOR A TOWEL AND PAT IT UP

 AS POSSIBLE.
    

 INDEPENDENCE


IS THE ONE THREAT THAT SCARES

 ME TO DEATH


     OTHER PEOPLE I SEE ARE COMPLETELY DEPENDENT
                GOOD
  I BELIEVE  THEY TAKE  CARE OF PEOPLE HERE

 BUT THEY ARE 90 YEARS OLD

 I AM YOUNG AND IN NO WAY

 WANT TO BE THAT WAY.

 I DON'T KNOW HOW MUCH FIGHT

I HAVE IN ME.

 I HAVE ALREADY GIVEN IN TO SHOWERS BY MY SELF

 OR GOING TO THE BATHROOM

 BY MYSELF


 I CAN'T  BELIEVE I AM THIS FAR GONE

BUT  I  SUBMIT TO IT.

 WHY LORD WHY DO I TAKE THE DIFFICULT

 ROAD

YOU ARE VERY SENSITIVE

 ABOUT EVERYTHING

THIS IS MY CHALLENGE BUT

 LORD I WANT TO FEEL YOU THERE.

 WE DROVE BY PLACES TODAY

 THAT MY FRIEND CONNIE

AND  WE VISITED IT MANY PLACES LIKE DENNY'S

WHEN I SAW IT REMEMBER

 HOW WE LIVED

AND TALKED AN ABUNDANCE OF LIFE

SUPPORTING AND EMPOWERING EACH OTHER

 PEOPLE ARE AFRAID

TO TAKE ME OUT BECAUSE THEY ARE AFRAID THEY CAN'T DO IT.

 OR SOMETHING ABOUT

 ME FALLING.

 I HAVE FALLEN MANY TIMES

 AND STILL KEEP TICKING.

 NOT THAT I WANT TO FALL BUT

 I WANT TO EXPERIENCE   
 
MY FAMILY, MY FRIENDS WITHOUT THEY DESERTING ME

I KNOW SOME PEOPLE CAN BE WITH ME

I KNOW SOME PEOPLE CAN'T  BE WITH ME

 I HAVE TO LET EVERYTHING GO

FRIENDS, APARTMENT, AND CAR

  GOD YOU HAVE GIVEN ME THE STRENGTH

  TO DEAL WITH

LETTING GO BUT

MANY THINGS  GO THROUGH MY HEAD

 IN A DAY.

 THE NURSES AND AIDES

 HAVE FUN WITH ME

 AND WE

JOKE AND JOKE AND JOKE

TO MY DEMISE AT TIMES

AND SURELY THEIR DEMISE