GOD YOU CHALLENGE THE DEPTH OF MY SOUL

GOD WE STARTED THIS JOURNEY TOGETHER

AND

WE WILL BE TOGETHER AT THE END

I CHALLENGED YOU AT THE BEGINNING 

 TO SHOW PEOPLE WHAT YOU CAN DO WITH AWFULL

WELL LORD IT IS STILL AWFULL

BUT I AM SURVIVING.

NOBODY PROMISED ME A ROSE GARDEN

BUT AS A HUMAN 

 I WOULD SAY 

LORD

TAKE THIS DISEASE AND SHOVE IT

BUT

AS A CHRISTIAN WOMAN 

I WOULD SAY 

 LORD


GIVING A HEALING LORD


OR TAKE ME HOME WITH YOU

WHICH WOULD I CHOOSE

I CAN'T MAKE UP MY MIND

I AM A WOMAN

SO LORD I HAVE NO CHOICE IN THE MATTER

IT IS ALL UP TO YOU

I WILL JUST DO MY PART TO TOLERATE

THIS AWFUL DISEASE

AND TRY AND MAKE SENCE 

OF IT THE BEST WAY I KNOW HOW.

THE WAILING AND BAWLING AND SOBBING

LORD COULD YOU PLEASE GET A HANDLE ON THAT

I DON'T SEEM TO BE ABLE TO DO A DAMN THING WITH

THESE EPISODES!

IT REALLY TAKES A LOT OUT OF ME

I CAN'T BREATE

MY HAND SPASMS

PLEASE LORD GIVE ME

THE STRENGTH TO CONTINUE ON

MO MATTER HOW DIFFICULT

IT BECOMES

THIS HOSPITAL STAY

HAS CHANGED MY LIFE FOREVER

I AM NO LONGER THE JANE 

WITHOUT THE SCARS OF ALS

I NOW HAVE MY FIRST OFFICIAL SCAR

A FEEDING TUBE

HELP TO UNDERSTAND WHAT MY FAMILY 

IS TO DO WITH THIS 

DIFFERENT AND STRANGE

NANA

ALS IS ALL CONSUMING 

IT AFFECTS EVERYTHING

AND THEY TELL YOU YOU WILL GET WORSE 

EACH DAY

AND 

YOU WON'T GET BETTER

AND 

YOU WILL DIE

HOW CAN ALS NOT PROFOUNDLY AFFECT

ALL WHO SEE ITS

ROOTS

PLEASE LORD GIVE ME THE STRENGTH

TO ENDURE

I DO PRAISE YOU ANYWAY