DEAR LORD I HAVE BEEN HERE FIVE DAYS

MY DEAREST LORD 

DO I HAVE TO LEARN THESE LESSONS

SO SOON?

I AM OUT OF MY COMFORT ZONE 

BUT NOT 

THAT FAR OFF

MY ALS IS NOT ALL CONSUMING 

AND DISABLING BUT IT SOON WILL BE.

 WHY NOT KEEP ME OUT OF A NURSING HOME AS LONG AS POSSIBLE

I WILL BE SINGING THIS SONG SOON ENOUGH.

OTHER ALS FAMILIES 

 SAY THEY TRAIN VOLUNTEERS TO HELP

 IT IS NOT ALWAYS PAID NURSES

 THAT NEED TO BE HAD.

 DON'T BE TO QUICK TO THE DRAWAL

ISN'T THIS LIFE WORTH IT.

 AS LONG AS I CAN GET AROUND AROUND,

AS A NORMAL HUMAN BEING

WITH A LITTLE HELP

HELP ME FREE AS A BIRD.

 HELP ME  ENJOY MY GRAND CHILDREN

I KNOW THIS REHAB WILL HELP ME GET STRONG

  

 I AM TAKING PART IN THE PHYSICAL THERAPY

 SPEECH THERAPY WILL BE BENEFICIAL

  I  KNOW I ALREADY TAKE A LOT MORE CARE

I NEED A LOT OF ADAPTIVE GADGETS

I HAVE SOME AND NEED MORE.

 SOMEONE SAID DID YOU MAKE NEW FRIENDS

 HELL LORD THIS IS NOT A SOCIAL CALL

  

 THIS IS THE TWILIGHT OF MY LIFE.

 I WANT OUT OF HERE 

AND

SOON AS

I

LEARN THE LESSONS 

I AM TO BE TAUGHT.

BUT LORD WHY 

   WHY DO I SEE MY ROOM MATE 

THE WAY I WILL BE SOON ENOUGH.

HAVING TO HAVE EVERY HUMAN NEED 

TAKEN CARE OF BY OTHERS.

MY DESTINY

 BUT LORD TELL OTHERS 

 NOT TO PUT ME HERE UNTIL I CAN'T DO FOR MY SELF AND 

THEY HAVE TO SACRIFICE TOO MUCH.

BELKIS HAD HER SISTER TAKE CARE AND LIVE WITH HER MOTHER.

RIGHT NOW I AM NOT DIIFICULT

AND CAN LIVE ON MY OWN

 OR

 STAY HERE FOR A WHILE AND STAY THERE FOR A WHILE

WHY DOES HAVE TO BE STAY ON MY OWN OR GO TO A NURSING HOME

THERE SHOULD BE SOME IN BETWEEN TIME.

I AM NO TROUBLE