NOBODY KNOWS THE TROUBLE I SEE GLORY ALLELUIA

MY DEAREST LORD

 I SEE TROUBLE COMING THE LONGER 

   

 I STAY HERE.

 IT IS DIFFICULT TO THINK

  

 WHEN YOU ARE IN AN ENCLOSED AREA.

  I AM COMPLETING

MY OT/PT ON MARCH 28, 2011

I AM GETTING WORSE AND NOT IMPROVING 

  

 SO I DON'T WORK ON THE PROBLEM.

  

 THE REASON I HAVE COOPERATED HERE

IS BECAUSE I HAD PLACES TO BE

AND 

THINGS TO WORK ON

TO HELP MY SELF

WHEN I AM NOT MOTIVATED,
I TEND TO WITHER

YOU CAN ASK PEOPLE TO BE INTERESTED IN YOU REALLY.

BUT THEY ALL HAVE THEIR OWN LIVES.

 I AM NOT EATING WELL

 AND NEED TO FIGURE THIS OUT MYSELF.

THEY SAID GET YOUR  HAIR CUT WITH BANGS

 WE ARE AFRAID YOU WILL FALL.

I AM TOLD THINGS THAT WILL MAKE MY LIFE EASIER 

 THAN IT IS NOW

  

 BUT NOTHING CHANGES THIS ILLNESS

IT IS GETTING WORSE WALKING

  

 AND I PRIMARILY

USE A WALKER TO GET AROUND.

 I KNOW,
  I NEED THAT IN MY HOME.

IF I SELL MY HOUSE AND SPEND THE MONEY

 ON MY BILLS.

 THEN I WOULDN'T HAVE TO WORRY ABOUT BILLS.  

 I DO KNOW I WILL BE ABLE TO LEAVE

 FOR A COUPLE DAYS

THAT SOUNDS FAIR 

 BUT CAN I GO HOME

 I AM LOSING WEIGHT AND HATE EATING.

 I DON'T KNOW WHETHER IT IS HERE

 OR  

 I WILL DEPEND ON THE FEED TUBE ALONE

 THAT SCARES ME.

 MORE DEPENDENCE.  

 LORD,
I WAS INDEPENDENT
AND 

  

 GOT TO BED BY MYSELF OR GET UP BY MYSELF

  I HAVE TO HAVE HELP TO DRESS MY LOWER HALF.

SOCKS AND SHOES ARE HELL.

THIS HAS BEEN IN THE LAST TWO WEEKS

 I PARTICIPATE  IN 

 

"PATIENTS LIKE ME"

 AND 

"CHAT WITH ALS PATIENTS AROUND THE WORLD"

 I RECOGNIZE COMPARED TO OTHERS 

   

 I HAVE A VERY BAD 

 CASE OF ALS

 MY SWALLOWING AND BREATHING

ARE THE MOST LIFE THREATENING

BUT FALLING AND ANY SURGERY 

 COULD DO ME IN. 

 SOMETIMES I AM IN A RUSH TO DO EVERYTHING 

 AND  

 SOMETIMES I DON'T CARE

SEE THE TROUBLE I SEE

 GLORY ALLELUIA

 GOD YOUR ARE ON MY SIDE

 I KNOW YOUR THERE 

BUT WHY DO I FEEL YOUR ABSENCE

 IS IT THAT I CAN'T LIVE WITH  FAMILY

IS IT A MOVE TO BRING ME HOME TO YOU. 

 I KNOW YOU LOVE ME,

BUT I CAN'T FIX THIS TROUBLE I SEE.

LORD I NEED YOUR PEACE TO ENVELOP ME.

  PLEASE I FEEL I AM FIGHTING EVERYWHERE

 I KNOW YOU ARE THERE

  

 PUT A HEDGE OF PROTECTION AROUND ME 

SO THAT THIS DISEASE DOESN'T EAT ME ALIVE.