THANKFUL FOR BEING HERE

MY DEAREST LORD

I AM FEELING VERY THANKFUL TODAY!

MY ARM IS A LITTLE BETTER
AND

 I COULD TAKE A SHOWER
AND
WASH MY HAIR FOR THE FIRST TIME 

SINCE LAST SATURDAY

WHEN I FELL AND HAD TWO BLACK EYES!!!

MY POOR FRIEND EDIE

  

 AND FAMILY

THEY HAD TO DEAL WITH THIS DISEASE

PEOPLE ARE BEGINNING TO GET IT A LITTLE

 BUT I AM NOT. 

 HOW DO YOU EXPECT ONE PERSON TO DEAL 

WITH ALL

THE RAMIFICATIONS OF THIS DISEASE?

ALS
SUCKS, SUCKS, SUCKS

 IT DRIVES PEOPLE AWAY 

 IT SCARES PEOPLE

 IT FRIGHTENS PEOPLE 

 I THINK AFTER SOMETHING HAPPENS
WE AS HUMANS JUST DEAL WITH IT.

 BUT UNTIL THEN WE

WORRY WHAT IT IS GOING TO BE LIKE.

 

IN THE LAST TWO WEEKS I HAVE DEALT 
WITH A FEED TUBE

HURRY UP AND GET ON THE SCHEDULE!!

 TRAKE SOONER THAN LATER

 ORDER A WHEELCHAIR NOT A SCOOTER

 ORDER A SPEAKING DEVICE

 THEN ELLEN SAYS 

WHERE ARE YOU GOING TO LIVE?

THEN I COME HOME 
AND 
MY

 BELOVED KAREN IS THERE!!!

SHE HOLDS ME UP WHEN I CAN'T BREATHE.  

  

 SHE IS A TRUE CHILD OF GOD

SHE TAKES WHAT I SAY

NO MATTER WHAT AND HELPS ME DEAL WITH IT!

GOD YOU HAVE TAUGHT YOUR MINISTERS WELL

 WHEN OTHERS CAN'T UNDERSTAND 

  

 MY CHAIN OF MINISTERS AT LEAST TRY!

IT SO DIFFICULT TO UNDERSTAND
SOMEONE 

FACED WITH IMPENDING DOOM

IT IS NOT ALL DOOM!

 EMBRACE THE NEW GADGETS

 SPEND QUALITY TIME WITH LOVED ONES

LIVE EVERYDAY TO THE BEST OF YOUR ABILITY

I AM TRYING TO LET PEOPLE KNOW ALS IS SURVIVABLE

TO A POINT!

MY DOCTORS ARE THE BEST

THEY ARE GUIDING ME
BUT
I NEED TO GET ON PATIENTS LIKE ME

 TO ASK ABOUT ALL THESE NEW THINGS

I PRAISE YOU

OH LORD 

FOR 

 MAKING ME PRO-ACTIVE 

I AM STILL FIGHTING TO LIVE

 I HAVE NOT GIVEN UP YET