Tuesday, August 17, 2010

My Dearest Friends and Family

My "EF" just let me get through on facebook. The first time I have written on my wall. I copied and pasted. All summer I could not understand why I could not think to add anything like the rest of you with smart quips and quotes and interests. I have not had many of your exciting interests and travels and was feeling bad about writing something cute.

Well now I know.
I was told on August 3, 2010 that I have ALS.

I could not drive or live alone and I was going to die. Poof in 20 minutes.

There has to be a better way.

IF you have ALS and can figure out what an easier way is to tell someone this,
please respond!
I am going to have to write a MANUAL about
how to tell someone this news.


I have a headache and am up. At least, I am not crying.

I have temporal lobe ALS, Bulbar ALS, and extremities ALS.
What ever all that means.

I was told to order a wheel chair and soon I would probably need a feed tube and a ventilator.



That is the reason, I am blogging to relieve a little bit of the tension.
This is not my light-hearted posts,
but
GOD said,


Show the world the truth of the matter.

This is difficult and I am tired.

I don't want to wreck everybody else's life but,
I am trying to cope without crying and laughing all the time.

Because:


I choke.

1 comment:

  1. (my comment seems to have disappeared??? I'll try again...)

    My dear brave Jane,

    I read your post on Facebook. I think you were so wise to post there. Everyone cares so much about you and I think it is good you let them know what is going on with you.

    Love,
    Linda

    ReplyDelete