HEADING TO ENGLAND

HELLO GOD!

I AM LEAVING MONDAY

TO FLY TO ENGLAND.

I WENT TO THE ALS SYMPOSIUM TODAY

AND ENTERED 

A GENETIC TESTING,

GROUP AT NIH

  

I WAS TESTED FOR WEAKNESS 

I BELIEVE,
THAT  

IS THE REASON I AM SLOW TO GET EXCITED.

"EFF" 

  (EXECUTIVE FUNCTION FAILURE)

AND
HAS IT VERY TIRING FOR ME  TO PACK.

I KNOW ONCE I GET THERE,

I WILL BE GRATEFUL FOR EVERYTHING!

I THINK THAT IS,
WHAT IS DIFFICULT 

 ABOUT HAVING ALS.  

 IT TAKES SO MUCH ENERGY:

TO BREATHE,

TO TALK,

AND 

TO WALK, 

THAT I AM WORN OUT.

TOO TIRED TO PUT ON 

MY BI-PAP MACHINE.  

I DO NOT WANT TO WEAR OTHERS OUT, 

 TO HELP ME OUT.

I STILL SEEM TO HAVE MY SENSE OF HUMOR THOUGH.

I LAUGHED SO MUCH TODAY,

MAYBE THAT WORE ME OUT. 

 BEAR SAID,

HE HAD NEVER SEEN ME LAUGH SO MUCH.

 WAS IT "EFF"  

OR MY SICK SENSE OF HUMOR?

BARBARA, 

ALMOST RAN OVER ME WITH HER CAR.

SHE DID NOT EXPECT TO HAVE ME WALK DOWN WITH HER FROM A STORE.

LUCKY,

I ANTICIPATED

SHE DID NOT SEE ME AND STOPPED.

OR 

WAS IT THAT I DID NOT TRUST HER TO DO ME IN.

JUST JOKING!!!

THAT IS WHAT I MEAN ABOUT LAUGHING ALL DAY.

ONE LINERS HAVE FLOWN ALL WEEK-END.

EVERYBODY SAYS I SHOULD WRITE

AN 

ALS JOKE BOOK.

WOULDN'T THAT BE A HOOT! 

WELL, HOPE I CAN CONTAIN MYSELF A LITTLE IN ENGLAND,

OR I WILL NEVER SURVIVE!

YOU SEE,
I CAN'T BREATHE WHEN I LAUGH!

HOW TO KILL AN ALS PATIENT!

TELL THEM A JOKE!

I GUESS IT IS BETTER TO LAUGH AT YOURSELF

THAN CRY ALL THE TIME.

THAT IS "EFF" FOR YOU!

I LAUGHED SO HARD FOR TWO DAYS,

  I AM TOO TIRED TO GO TO ENGLAND!

THINK AGAIN

I AM ON MY WAY!